S is for Specialists

I have two appointments set up. One is in Boston and one in NYC. Yesterday I took the time to get Ellie's records together. This waiting is terrible. I think knowing will be better than all of this waiting and reading. If it is just infantile scoliosis (ha! just infantile scoliosis something I didn't think I would HOPE for a week ago) then I am worrying unnecessarily here. We will go to Children's next week for our consult. I just want to say that I am grateful that we have always lived in areas of the country where we have access to top notch hospitals. Without Weill-Cornell we would not have our daughters and now we have access to Children's in Boston. It is our small silver lining.

C is also for Crooked

I am not the best speller and I have to admit scoliosis always throws me for a loop. When I was in high school I didn't want to get the yearly scoliosis screening because I was embarrassed that I didn't have nice bras. I lived with my Dad and I couldn't explain to him why I didn't want screening and we had a huge fight about it because he refused to write me the excuse note. Turned out it was because he didn't want to look dumb since he couldn't spell scoliosis. I haven't thought much about it in a long time. We go on with life and screenings end with high school. I went out into the world and got my degrees and met my husband. We had our girls (Big Sis and Baby E) both healthy, smart and happy children.

Last week my husband asked me to take Baby E to the doctor. He had noticed a lump on her back that was getting worse. Since he gave the baths he got to see her bare back more often. I was very busy with her projectile vomiting and acid reflux that I noticed the slouchiness but attributed it to the need for more core strength. I called our pedi and they assured me that any issues the big S would be "extremely rare" but I could come in anyway.

An xray sealed the deal. Our baby's back is shaped in an unnatural C curve. At less than 7 months old, she has scoliosis.

I thought I had a handle on things. I know all of the infertility lingo but now I am in the world of infantile scoliosis and on the learning curve for sure. Baby E has a Cobb angle of 47 degrees and we are awaiting an appointment with a spine specialist at Children's hospital. I have started this blog to document our journey because C is for both cookie and Baby E's spine.